Hello all! I have to admit it has been a crazy couple of weeks! Here is a way through, my motto perhaps: Prayer is paramount and Prayer prevails…it just does.
So, on top of all the nasty bilirubin symptoms Michael was having he developed a fever last Friday and it was still present Saturday morning. Thankfully we did have antibiotics prophylactically on hand and we started him on them Saturday morning. By Sunday morning the fevers were gone. However, we had put the bilirubin bags on to help drain off any infection and when we removed them again (after only 4 hours) his right drain was leaking like crazy. We had to change the dressing every 2-3 hours. We called the advice nurse and she consulted with an interventional radiologist who said to put the right bag back on and stop eating in order to prepare for another drain exchange in the morning. OK I only slept about 2 -3 hours that night. When we were up around midnight, changing a dressing, I rigged up a giant pad and covered it with saran wrap so we could try and rest. Then I prayed really hard. I asked for help and I really meant it. And then at that point in time the leaking stopped. Oh, thank God! The next day we chose not to go get another drain exchange. The problem was solved. That would have been a whole new insult to Mike’s body!
Monday and Tuesday were recovery days and since then there has been a step-by-step reversal of the nasty bilirubin symptoms! Pee and poop are the correct colors, itching has reduced way down, mental fog finally lifted. GERD has way reduced. His appetite has even come back although he is challenged to drink down the vegetable juice I make for him (and me) now that I added beets to really cleanse the liver. He has been so weak. Just laying in his recliner and with no mental strength. Wednesday he started doing taxes again and we managed a trip to Costco to pick up his new hearing aids!
He got another fever today, Thursday, which was unexpected because he is still on antibiotics. We contacted the advice nurse by phone and the answer is, as always, go to the ER. We do not plan to do that. So, another day of wait and see. AND we know that it can all reverse with prayer and overwhelming love from God that accepts our darkness and shadow selves along with our light.
Oh, I almost forgot, my hip has been slowly doing better. I went to a good chiropractor today and I think I have a good plan for healing for me too!
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